Yasser El-Miedany MD, FRCP
Consultant Rheumatologist
H.Senior Clinical Lecturer,
Kings College London

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Rheumote
e-Patient Reported Outcome Measures

Most people see a rheumatologist because of pain, fatigue or difficulty to carry out their activities of daily living. In the follow up visits and to monitor response to treatment, the treating health care professional will ask the patient about these symptoms to recognize and document whether the patient has got better, unchanged or worse after taking the medication. As these symptoms (pain, fatigue, functional ability, sleep, feeling down, ability to work etc.), are only reported by the patient and in view of the fact that there are no tools to calibrate such symptoms; non-traditional approaches have been developed to standardize the collection process of this information. This is called "Patient Reported Outcome Measures", which usually come as a self-report questionnaire completed by the patient. Disease activity status can be assessed in view of the patient's answers and this would be equivalent to measuring blood pressure for hypertensive patients or blood sugar for patients diagnosed to have diabetes mellitus. Therefore, only such data allow accurate description of changes in status over months or years, simply because neither the patient nor the health care professional can remember the patient's earlier status unless it was measured and recorded.

Electronic patient reported outcome measures (e-PROMs) have been developed recently for use in rheumatology practice for their ability to enhance clinical care by flagging disease flare ups as well as monitor disease activity status over time.Rheumote is a new online tool ot allow you to assess your desease activity and monitor your response to treatment. This website offers you user-friendly online ePROMs questionnaires for self-reporting your disease activity measures of different rheumatic diseases. For rheumatoid arthritis patients, by providing your inflammatory markers such as ESR and CRP, the system will automatically calculate your disease activity in "2" forms namely: Disease Activity Score (DAS-28) and RAPID3 score. To understand your disease activity status and the meaning of these disease activity scores, we would advise you to have a look at our tutorial present below before you complete the questionnaire. Upon completion, you can save the completed questionnaire, print it or email it to us by clicking on the save/ print or send buttons at the end of the questionnaire. If you have any further query please do not hesitate to contact us.

"ePROMs" Copyrights reserved. Patent pending; Registration Number GB 1511756.7

Rheumote: e-PROMs English

Rheumatoid Arthritis (RA)

Spondyloarthritis (Ankylosing Spondylitis/ Psoriatic Arthritis)

SLE

Fibromyalgia

Osteoarthrits(OA)

Rheumote: e-PROMs Arabic

Rheumatoid Arthritisss (RA)

Spondyloarthritis (Ankylosing Spondylitis/ Psoriatic Arthritis)

SLE

Osteoarthrits(OA)